TY - JOUR
T1 - Qualitative inductive analysis of the lives of women with persistent cloaca based on their narratives
AU - Miyata, Junko
AU - Hamada, Yuko
AU - Hayashishita, Satomi
AU - Fujita, Ayaka
AU - Izaki, Tomoko
AU - Obata, Satoshi
AU - Kondo, Takuya
AU - Fukuta, Atsuhisa
AU - Kawakubo, Naonori
AU - Nagata, Kouji
AU - Tamaki, Akihiko
AU - Maniwa, Junnosuke
AU - Takahashi, Yoshiaki
AU - Matsuura, Toshiharu
AU - Taguchi, Tomoaki
AU - Tajiri, Tatsuro
N1 - Publisher Copyright:
© The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature 2024.
PY - 2024/12
Y1 - 2024/12
N2 - Purpose: The study aimed to explore and describe the lives of patients with persistent cloaca (PC) from childhood to adulthood. Methods: Semistructured interviews were conducted with nine adult patients with PC. Their experiences and thoughts regarding this disease were analyzed qualitatively and inductively. Results: After classifying the experiences and thoughts of patients with PC, 13 categories were extracted. The following five themes emerged from these categories. (1) Difficulties with excretion and vaginal management because of the disease. (2) The degree of understanding of those around them and society has a huge effect on their way of life. (3) The inferiority of a woman who is not a “normal woman.” (4) A “never-ending disease” in which problems continue even after the transition period. (5) Differences in the central point of the narrative depending on the age group. Conclusions: In this study, qualitative and inductive analyses of data from semistructured interviews with patients with PC revealed their experiences and thoughts. The results will provide a guide for young patients and the medical professionals who treat them. Accordingly, monitoring their lives until adulthood is necessary.
AB - Purpose: The study aimed to explore and describe the lives of patients with persistent cloaca (PC) from childhood to adulthood. Methods: Semistructured interviews were conducted with nine adult patients with PC. Their experiences and thoughts regarding this disease were analyzed qualitatively and inductively. Results: After classifying the experiences and thoughts of patients with PC, 13 categories were extracted. The following five themes emerged from these categories. (1) Difficulties with excretion and vaginal management because of the disease. (2) The degree of understanding of those around them and society has a huge effect on their way of life. (3) The inferiority of a woman who is not a “normal woman.” (4) A “never-ending disease” in which problems continue even after the transition period. (5) Differences in the central point of the narrative depending on the age group. Conclusions: In this study, qualitative and inductive analyses of data from semistructured interviews with patients with PC revealed their experiences and thoughts. The results will provide a guide for young patients and the medical professionals who treat them. Accordingly, monitoring their lives until adulthood is necessary.
KW - Inferiority as a woman
KW - Internal failure difficulties
KW - Narrative-based medicine
KW - Persistent cloaca
KW - Qualitative inductive analysis
KW - Transitional care
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U2 - 10.1007/s00383-024-05807-9
DO - 10.1007/s00383-024-05807-9
M3 - Article
C2 - 39160317
AN - SCOPUS:85201550895
SN - 0179-0358
VL - 40
JO - Pediatric surgery international
JF - Pediatric surgery international
IS - 1
M1 - 236
ER -